It came to a nephrectomy. A radical step. Even the procedure name has 'radical' in it- Radical Nephrectomy.
It was not a decision that I made easily. It took 4 years an a lot of attempts to fix it to get here, and now it is done.
I was left with 2 options: an ileal ureter and nephrectomy. The ileal ureter had the potential to save my kidney but was not a guarantee. The nephrectomy would cost me a kidney but would be the end of that kidney's drama.
The ileal ureter is a really involved operation and I was not a candidate for laparoscopy meaning a long incision lots of pain and a long recovery. With my clotting disorder- this would be really risky. A nephrectomy being much a much simpler procedure and much less pain and time on recovery.
The surgery was a week ago tomorrow- and there is significant pain- but I feel better than I did before. I don't feel sick. I already feel better now than I did for the past few months before surgery.
Losing my kidney has not negatively impacted my total renal function at this point, and after getting in there, my doctor completely agreed that the kidney had to go.
So now to recover and make up for lost time... what am I going to do with all the time NOT spent in doctors offices?